The 15th of May is Mucopolysaccharidoses (MPS) Awareness Day and SA honours Zach, whose family are fighting for his medical rights.

South Africa (17 May 2024) – Rare Diseases South Africa recently shared a post honouring all the little South Africans that have been diagnosed with Mucopolysaccharidoses (MPS) for MPS Awareness Day which takes place on the 15th of May. One of those South Africans is Zach.

Zach has Mucopolysaccharidosis Type 2 (MPSll) or more commonly known as Hunter syndrome. He first popped on our radar a year ago when we learned his parents were challenging their medical aid provider for help in covering the costs of his treatment.

Mom, Michaney de Wet, and Dad, Jacques de Wet, were left stunned when their medical aid refused to pay for Zach’s treatment. Treatment in his case is essential because it means Zach’s life expectancy goes from early teens to well into his 50s, giving him a chance at a full life.

Hunter syndrome prevents Zach’s body from breaking down certain proteins due to a missing enzyme in his DNA makeup. These proteins build up in his body, surrounding his vital organs, brain, bones and joints. Over time, this build up can be fatal as they prevent the body from functioning correctly. Enzyme Replacement Therapy is how it is treated.

To combat the medical aid’s refusal to cover the costs, the family with the support of Rare Diseases South Africa have gone to court. The legal battle has continued to this day with little to no resolution as of yet. The goal of the legal action is to have his treatment listed as a prescribed minimum benefit.

Rare Diseases South Africa has continued to support the family in this legal battle, and thankfully, HJW Attorneys have been working pro bono on this case. However, there are other legal fees that need covering, and the hope is that MPS Awareness Day could help raise awareness for not only Zach’s case but also the president it will set for other children who also need this treatment.

“Our legal fees to date on this matter continue to climb. Whilst our advocates in the high court process are Pro
Bono, the Council for Medical Schemes process isn’t. This works in our opponents’ favour. With a massive legal firm on retainer, they know that the longer they delay the process, the less likely we will be to be able to see it through, due to the climbing costs.

With NHI being signed into power today, we can expect a lot more cases like this as we fight and lobby for improved access to services for those of us in the unfortunate position of not quite fitting the healthcare “mould” – Kelly Du Plessis

If you would like to support this cause, you can make a donation to the Rare Diseases SA legal fund: https://www.givengain.com/campaign/legal (and qualify for a Section 18A).

OR: You can make a contribution to our legal fees directly to the attorney trust account.

Banking Details:
Account Name: HJW Attorneys Trust
Account: 627 475 134 49
Bank: First National Bank
Branch Number: 204809
Ref: M02024

“Together, we can make a difference. Let’s stand in solidarity with the Zach’s of the world, and continue to advocate for those of us who are left behind in healthcare”

Every person can make a difference for Zach; you can follow his social pages where his parents are raising awareness about Hunter’s syndrome or check out the website here. Sharing his story is the first step in helping the family win their fight.

Sources: Rare Diseases South Africa / Kelly Du Plessis

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Or watch an episode of Good Things TV below, a show created to offer South Africans balance in a world with what feels like constant bad news. We’re here to remind you that there are still so many good things happening in South Africa & we’ll leave you feeling a little more proudly South African.

The post Rare Diseases SA Honour Little Zach and his Big Case for MPS Awareness Day appeared first on Good Things Guy.

This World Glaucoma Week the South African Glaucoma Society shares what to look out for so people know when to seek medical support.

South Africa (08 March 2024) – Glaucoma, a group of eye conditions that damage the optic nerve, essential for good vision, is one of the leading causes of irreversible blindness in Africa affecting more than 6 million people.

Shockingly only 1 in 20 are aware they have glaucoma and 50% will be blind in one eye by the time they seek an ophthalmologist for the first time.

In Sub-Saharan Africa, it is estimated that 4.16% of the population aged 40 years and older are affected by glaucoma with a higher incidence among the black population (5-7%) compared to the Caucasian population (3-5%).

Despite being treatable, the South African Glaucoma Society (SAGS) emphasises the major challenges faced, including lack of awareness, late diagnosis, poor follow-up visits, and low compliance with treatment plans.

Dr Marissa Willemse, specialist Ophthalmologist and President of SAGS highlights that glaucoma, often termed the “silent thief of sight,” exhibits no noticeable symptoms in its early stages, underscoring the critical importance of awareness.

“Vision loss has devastating social, personal and economic impact, often leading to unemployment, loss of income, lowered standards of living, depression and anxiety. Early detection of glaucoma is essential to improve the chances of preventing vision loss and blindness.”

“Untreated glaucoma increases intraocular pressure – the pressure, or force, that builds up inside of your eyes – damaging the optic nerve, which is responsible for transmitting visual information from the eye to the brain. Over time the optic nerve damages lead to vision loss and in advanced stages, blindness which cannot be restored.”

She said that access to eye care services, including screening, diagnosis, and treatment for glaucoma, is essential for managing the condition effectively.

“In South Africa, efforts are being made to improve access to eye care services, particularly in underserved communities where the burden of glaucoma may be higher.”

Who is most at risk?

Dr Willemse says that there are certain risk factors for developing glaucoma and that regular eye examinations with an ophthalmologist are crucial in detecting glaucoma early, as the condition often does not cause noticeable symptoms until it has already caused vision loss.

The risk factors include:

• Age: The risk of developing glaucoma increases with age, particularly in individuals over 60 years old although in Africa the age is as recent as 40.
• Family history: A family history of glaucoma, especially in a first-degree relative (parent or sibling).
• Race or ethnicity: African Americans, Africans, Hispanics, and Asians are at a higher risk.
• High intraocular pressure: Individuals with elevated intraocular pressure (IOP) are at a greater risk of developing glaucoma. However, not everyone with high IOP will develop glaucoma, and some individuals with normal IOP may still develop the condition.
• Thin central corneal thickness: Studies have shown that individuals with thinner corneas may be at a higher risk.
• Medical conditions: Certain medical conditions, such as diabetes, hypertension, and cardiovascular disease, can increase the risk.
• Previous eye injuries or surgeries: Trauma to the eye or previous eye surgeries.
• Near-sightedness: increases the risk of developing glaucoma.

Symptoms

With progression over time, certain warning signs will appear which should not be ignored. Dr Willemse says “It’s important to note that some of these symptoms can also be caused by other eye conditions, necessitating a thorough eye examination to find the root cause and decide on the appropriate treatment options.”

• Gradual loss of peripheral vision: Glaucoma often affects peripheral vision first, leading to tunnel vision or more often blind spots in the side or corners of the visual field. Patients are often only diagnosed after failing their driver’s license renewal test.
• Blurred vision: Blurry or hazy vision can indicate damage to the optic nerve.
• Halos around lights: Some glaucoma patients may experience halos or glare around lights, especially at night.
• Eye pain or redness: In a few cases eye pain, redness, or discomfort can be detected.
• Nausea or vomiting: Severe cases of acute angle-closure glaucoma can cause symptoms such as nausea, vomiting, and severe eye pain.  This is an emergency, and a patient can lose his or her vision within hours of the onset of the angle closure.

Screening for glaucoma

It is recommended that any under the age of 40 years undergo screening every 2-4 years, between 40 and 60 years of age every 2-3 years, and over 60, yearly.

Screening for glaucoma typically involves a comprehensive eye exam that includes several tests to assess the health of the eye and detect any signs of glaucoma, including:

• Tonometry: Measuring the pressure inside the eye (intraocular pressure) using a tonometer device. Elevated intraocular pressure is a key risk factor for glaucoma.
• Ophthalmoscopy: An ophthalmologist examines the optic nerve at the back of the eye for signs of damage or abnormalities associated with glaucoma.
• Perimetry (visual field test): This test measures the vision in the peripheral areas to detect any blind spots or areas of reduced vision that may show damage to the optic nerve.
• Gonioscopy: An ophthalmologist examines the drainage angle of the eye to determine if it is open or closed, which can help diagnose certain types of glaucoma.
• Special investigations such as Optical Coherence Tomography: the optic nerve and nerve fiber layers can be monitored for early changes and progression of glaucoma.

Treatment options

“Once the screening has been completed the ophthalmologist will establish an individual treatment plan for each patient with glaucoma,” Dr Willemse explains. “It is essential that the patient adheres to the plan and attends regular follow-up appointments to monitor their eye health and ensure that the condition is well-managed. We cannot stress enough how early detection and treatment of glaucoma is essential for preserving vision and preventing vision loss.”

She said the main aim of treatment is to lower the intraocular pressure and prevent further damage to the optic nerve. This can be done with medication which is used to help protect the optic nerve from oxidative stress and damage.

Eye drops are often prescribed to lower intraocular pressure in glaucoma and can be used chronically to prevent the build-up of pressure. Laser therapy may be used to improve the drainage of fluid from the eye and lower intraocular pressure. In some cases where medications and laser therapy are not effective, surgical procedures may be recommended.

Dr Willemse underscores the importance of awareness, urging regular eye exams, early detection, and appropriate treatment for effective glaucoma management. Accessing support networks and resources is essential for those living with glaucoma and their families in navigating treatment and care.

Sources: Supplied

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Do you have something to add to this story? Please share it in the comments or follow GoodThingsGuy on Facebook & Twitter to keep up to date with good news as it happens, or share your good news with us by clicking here or click the link below to listen to the Good Things Guy Podcast with Brent Lindeque – South Africa’s very own Good Things Guy. He’s on a mission to change what the world pays attention to, and he truly believes there’s good news around us. In the Good Things Guy podcast, you’ll meet these everyday heroes & hear their incredible stories:

Or watch an episode of Good Things TV below, a show created to offer South Africans balance in a world with what feels like constant bad news. We’re here to remind you that there are still so many good things happening in South Africa & we’ll leave you feeling a little more proudly South African.

The post Only 1 in 20 are Aware They Have Glaucoma: World Glaucoma Week 10 – 16 March appeared first on Good Things Guy.

Dr Carrie Anne Minnaar has unlocked a key finding in cervical cancer treatment that is set to change how it is treated in South Africa.

Johannesburg, South Africa (27 February 2024) – Breakthrough research in cervical cancer could bring hope to millions of women thanks to the work of a South African doctor, Dr Carrie Anne Minnaar, and her colleagues from the Wits Donald Gordon Medical Centre University.

Cervical cancer remains a significant health concern, particularly in low-to-middle-income countries, where morbidity and mortality rates are disproportionately high. Despite advancements in prevention and treatment, the burden persists.

Dr Minnaar specialises in hyperthermic oncology and is well-recognised for her ongoing clinical trials in this field. She holds a PhD in Radiation Sciences from Wits University. Apart from heading her own private hyperthermic practice at the Wits Donald Gordon Medical Centre, Oncology Department in South Africa, she is an honorary lecturer at the Department of Radiation Sciences at Wits University.

The Science of Hyperthermia

Using a type of heating technology (modulated electro-hyperthermia or mEHT) as a support to chemoradiotherapy (CRT) for locally advanced cervical cancer (LACC), the research has proven it to be a cost-saving, successful way to treat patients.

“Modulated electro-hyperthermia is selective, mild, and affordable – and for the first time ever, hyperthermia has now been researched in South Africa,” says Dr Minnaar. “Our studies found that it can cost-effectively improve quality of life for patients and increase their chances of achieving a five-year disease-free-survival status.”

Hyperthermia in oncology, the process of heating up a tumour to sensitise it to radiation or chemotherapy, has been around for decades. However, it hasn’t gained traction in low-to-middle-income countries, largely due to the costs and complexity of the treatments.

Together with her colleagues, Dr Minnaar’s research, conducted over the course of a nine-year trial (2014-2023) is the first of its kind:

• the first trial on hyperthermia ever to be investigated in a low-to-middle-income-country and to include a cost-effectiveness analysis,
• the first hyperthermia trial to include HIV-positive participants,
• and the first phase III randomised controlled trial on this groundbreaking hyperthermia technique.

“The findings extend beyond statistical success; they offer a potential paradigm shift in the way we approach cervical cancer treatment,” says Minnaar.

The European Society for Therapeutic Radiation and Oncology (ESTRO) has already recognised Dr Minnaar’s work, and in 2021, Dr Minnaar won the ctRO Young Investigator award for the results presented in their cervical cancer study.

As South Africa and other developing countries grapple with improving outcomes for LACC patients, Dr. Minnaar’s work stands out.

Her commitment to advancing the field of hyperthermia and bringing hyperthermia to South Africa, proving its feasibility and affordability, extends to other cancer types as well and is helping to pave the way for the use of this treatment in other resource-constrained countries which are in desperate need of effective but affordable treatments for cancer.

Her findings will be announced at the world-leading ESTRO radiation oncology conference in Glasgow from 3-7 May 2024.

Sources: Supplied

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Or watch an episode of Good Things TV below, a show created to offer South Africans balance in a world with what feels like constant bad news. We’re here to remind you that there are still so many good things happening in South Africa & we’ll leave you feeling a little more proudly South African.

The post SA PhD Doctor Unlocks Hope in Cancer Treatment – Findings Announced on World Stage appeared first on Good Things Guy.

The Multiple Sclerosis South Africa team have been globally recognised for building a supportive community for South Africans diagnosed with the disease.

South Africa (08 February 2024) – Multiple Sclerosis South Africa (MSSA) is celebrating a huge milestone, having earned global recognition for their work in building a supportive group for the country.

The disease is still underrepresented in South Africa but that is about to change! MSSA is raising the profile of the disease, offering support for families and raising funds to help make a difference. Their goal is to unite Africa and create a federation for the continent that will empower thousands of sufferers.

MSSA received recognition from the MS International Federation (MSIF). The director of MSSA, Non Smit, has been inducted as a member of the MSIF CEO Advisory Group, chaired by Ava Battles, CEO of MS Ireland. MSIF is the largest and sole international federation encompassing all MS organisations around the world under its umbrella. Having South Africa included means access to more information and support at a global level.

“We, at MSSA, and all our members, are thrilled to receive this acknowledgment. It reflects years of dedication and resilience, culminating in this significant milestone. Joining the MS International Federation in London, under the leadership of Mr. Peer Baneke, CEO, MSIF, marks a pivotal moment for us. We eagerly anticipate our role in shaping the international MS landscape.” – Christelle Taute, Vice-Chair MSSA

Speaking to the team at MSSA, we got to learn more about the disease and how it is being managed in South Africa. They have shared some in-depth information about MS but if you have any questions, you can reach out directly here.

What is Multiple Sclerosis?

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. It interrupts the flow of information within the brain and between the brain and body. Symptoms can range from numbness and tingling to blindness and paralysis.

Every case is proving unique, and the progress, severity and specific symptoms of MS in any one person cannot yet be predicted but advances in research, and treatment is moving closer to a world free of MS.

Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide. It is one of the most common diseases of the central nervous system. Today over 2,500,000 people around the world have MS.

We worked closely with MS South Africa in May 2023, the official awareness month for the disease, to share more information as well as meet three of their community members who have been living with the disease. Over the month, we met Christelle, Michelle and finally Tina.

By sharing their stories, so many more lives were changed. Several people reached out to Good Things Guy to give thanks for raising awareness. It started with one story and made a difference.

Having all their hard work recognised is a massive accomplishment indeed!

Sources: MSSA – Supplied 

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Or watch an episode of Good Things TV below, a show created to offer South Africans balance in a world with what feels like constant bad news. We’re here to remind you that there are still so many good things happening in South Africa & we’ll leave you feeling a little more proudly South African.

The post MSSA Gets Global Recognition for Work With Multiple Sclerosis Community appeared first on Good Things Guy.

Sweet Life South Africa, the largest local online Diabetes community, has created a series of stock images for people to use globally!

South Africa (29 January 2024) – Sweet Life is an organisation that works to raise awareness for Type 1 and Type 2 Diabetes in South Africa. As part of a fun campaign, they created a global resource using Proudly South African humans who are living with diabetes; that resource is free diabetes-themed stock images!

Working in the realm of media, we can vouch for how useful free stock images are. The Sweet Life team have created a series of stock images highlighting healthy lifestyles linked with diabetes.

“The images are of people with diabetes doing all the things we do – taking medication, cooking and eating healthy food, working, exercising and spending time with friends.”

Stock images are used for all kinds of projects, from news and media to school projects, presentations, and so much more. Having images that can be used freely while still being attributed to a source is massive! Especially if the images are promoting healthcare and lifestyle for people living with diabetes.

The Sweet Life Diabetes Community is South Africa’s largest online diabetes community. It was founded to create a space where people could access support, advice and more.

The team have created free cookbooks, diet guides, and podcasts discussing all manner of diabetes topics, and of course, they have the online community element.

Find out more about how to live a healthy, happy life with diabetes at www.sweetlife.org.za. You can access the stock images via Unsplash here.

Sources: Sweet Life – Supplied

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Do you have something to add to this story? Please share it in the comments or follow GoodThingsGuy on Facebook & Twitter to keep up to date with good news as it happens, or share your good news with us by clicking here or click the link below to listen to the Good Things Guy Podcast with Brent Lindeque – South Africa’s very own Good Things Guy. He’s on a mission to change what the world pays attention to, and he truly believes there’s good news around us. In the Good Things Guy podcast, you’ll meet these everyday heroes & hear their incredible stories:

Or watch an episode of Good Things TV below, a show created to offer South Africans balance in a world with what feels like constant bad news. We’re here to remind you that there are still so many good things happening in South Africa & we’ll leave you feeling a little more proudly South African.

The post Sweet Life Creates Proudly South Africa Stock Images for Diabetes Community appeared first on Good Things Guy.

Leanne Lorrance-Brown has helped care for Birdie since she arrived at HOLAH; Birdie’s rare disease is almost one of a kind and Leanne hopes to share her story at an upcoming conference.

South Africa (29 January 2024) – Birdie arrived at HOLAH (House of Love and Hope), a safe haven for abandoned and orphaned babies, in 2020 and has been the light of the haven. Birdie was recently diagnosed with a rare disease, so rare she is one of only 3 people in the world who suffer from the variant.

After years of suffering skin ailments, Birdie’s diagnosis has been the answer they have searched high and low for. She has been diagnosed with Penttinen Syndrome, a rare disorder that means she looks prematurely aged due to her skin, which is also prone to lesions that resemble scars and thinning hair. As far as the medical world can determine, only eight people have been diagnosed with Penttinen Syndrome, and further, only three of those (including Birdie) have her specific variant. Over the years, her skin will scar, and she will become less mobile and lose her independence.

“Birdie has very fragile skin, and a slight knock tears her skin. She is very aware of her limitations and is very cautious but that doesn’t stop her from having fun.

Due to her fragile skin, she often has several plasters on, and we have found that the best plaster for her is the op-site plaster. These come at a huge cost as the smallest one is around R15 each. She can sometimes have up to 4 plasters on which need to be changed daily or every other day depending on the severity of the wound.

Her medical costs are going to cost a small fortune..with Birdie being the only one In Africa with Penttinen Syndrome, it’s taking a lot of research and possibly trips to professors in other countries. OT and physio costs, making her home adaptable to her needs.”

“We reached out to a professor in Norway who has studied Penttinen Syndrome. And they have found that a drug used for Leukemia has shown to be effective in slowing down the progression of this syndrome. Penttinen is a sub-type of Progeria, which is premature ageing.

With Penttinen Syndrome, you have fibrous scar-like tissue that forms. This will eventually lead to Birdie not being the independent girl that she is.” – Leanne Lorrance-Brown

While treatment plans are underway, Birdie’s doctors are set to attend the Rare Diseases South Africa 2024 Conference. Leanne Lorrance-Brown, the co-founder of HOLAH, hopes to attend where she will then be able to share Birdie’s story along with her medical history and diagnosis to hopefully help doctors in identifying her rare disease, should another child ever be seeking medical help.

Leanne is now gearing up to attend the Rare Diseases South Africa 2024 Conference where she will be able to share Birdie’s story and meet up with rare disease experts to create more awareness and hopefully make life-changing connections.

Since taking Birdie in at HOLAH, the team have been blown away by the support from her medical team. They are spread across several different hospitals but have worked as a united team to get Birdie a diagnosis and treatment plan. Leanne personally thanked each of them for their continued support of Birdie’s needs. Many of her doctors have been in Birdie’s life longer than Leanne and her team, so they have been instrumental in bringing everyone up to speed on the case.

The hero team is:

• Dr Antoinette Chateau – a Paediatric Dermatologist
• Dr Thirona Naiker – Paediatric Genetics
• Dr Ashmika Gokhul – Paediatrician

“They all work at different hospitals but have been working alongside each other to finally get a diagnosis and have gone above and beyond to research.”

As Leanne gets ready to share Birdie’s story at the conference, she has some advice for parents raising curious children. Raising Birdie, she has seen just how unkind children can be when they do not understand differences.

“Teach your children that everyone looks different, Birdie is now at an age where she knows she looks different. There has been times where she has been having fun, dancing or swimming, and kids have called her an alien or walked up to her and just stood and stared. Birdie loves making friends, teach your kids to say hi and ask her to play.”

If you would like to support Birdie’s treatment or Leanne’s journey to the conference, you can find all the possible donation options via the website here. Just be sure to reference “Birdie – Rare” so they know how to allocate the funding or send proof of payment to kim@likhonithemba.co.za.

Sources: HOLAH

Don’t ever miss the Good Things. Download the Good Things Guy App now on Apple or Google. 

Do you have something to add to this story? Please share it in the comments or follow GoodThingsGuy on Facebook & Twitter to keep up to date with good news as it happens, or share your good news with us by clicking here or click the link below to listen to the Good Things Guy Podcast with Brent Lindeque – South Africa’s very own Good Things Guy. He’s on a mission to change what the world pays attention to, and he truly believes there’s good news around us. In the Good Things Guy podcast, you’ll meet these everyday heroes & hear their incredible stories:

Or watch an episode of Good Things TV below, a show created to offer South Africans balance in a world with what feels like constant bad news. We’re here to remind you that there are still so many good things happening in South Africa & we’ll leave you feeling a little more proudly South African.

The post Charity Raise Funds so Founder Can Share Birdie’s Rare Disease Story at Conference appeared first on Good Things Guy.

Organisations are doing everything to raise awareness for diseases and disabilities in South Africa; these are the groups to support in 2024.

South Africa (24 January 2024) – Diseases, disabilities and illness affect so many South Africans. Most have a group of dedicated supporters who fight to raise awareness and support people with illness. There are also major organisations advocating to collect blood and sign up organ donors and stem-cell donors. All of these healthcare organisations are making an impact on the South African healthcare system.

We have listed all the incredible groups we have worked with over the years on this helpful charity list.

If we have missed an organisation or charity, please email tyler@goodthingsguy.com, and we will add it soonest; kindly supply the relevant links as well as which province they work in, the NPO/NGO/NPC registration details and a brief description of what the organisation does.

Please note that this is a working list, so keep sending through your charities, and we will keep adding them! If you are looking for mental health organisations, we have a separate list here.

South Africa

• Association of Palliative Care Centre (Formerly Hospice) – Website / Facebook
• CANSA – Website / Facebook
• ChangeAbility – Website / Facebook
• Cheshire Homes – Website
• CHOC Childhood Cancer Foundation South Africa – Website / Facebook
• Clinton Health Access Initiative – Website
• Cupcakes for Hope – Website / Facebook
• DKMS Africa – Website / Facebook 
• Epilepsy South Africa – Website / Facebook
• Footprints 4 Sam – Website / Facebook
• Heart and Stroke Foundation – Website / Facebook
• Kids Kicking Cancer – Website / Facebook
• Little Fighters Cancer Trust – Website / Facebook
• Motor Neuron Disease Association South Africa – Website
• Multiple Sclerosis South Africa – Website / Facebook
• Organ Donation Foundation – Website / Facebook
• PatchSA – Website / Facebook
• Rare Diseases South Africa – Website / Facebook
• Reach for a Dream Foundation – Website / Facebook
• Reach for Recovery – Website / Facebook
• Retina South Africa – Website / Facebook
• SANBS – Website / Facebook
• Smile Foundation – Website / Facebook
• STEPS – Website / Facebook
• Sweetheart Foundation – Website / Facebook
• The Chris Burger Petro Jackson Players’ Fund – Website / Facebook
• The Cows – Website / Facebook 
• The Exceptional Nurse Campaign – Website / Facebook
• The Marian Rose Foundation – Website / Facebook
• Youth With Diabetes – Website / Facebook
• Zekwande Foundation – Website / Facebook

Eastern Cape

• Grace Vision NPC (Working in Zithulele) – Website / Facebook

Free State

• Association of & for Persons with Disabilities – Website
• Sunflower Children’s Hospice (Working in Bloemfontein) – Facebook

Gauteng

• hearX Foundation (Working in Pretoria) – Website
• Kungwini Welfare Organisation (Working in Pretoria) – Website / Facebook
• Little Eden Society (Working in Edenvale) – Website / Facebook
• Rainbows and Smiles (Working in Johannesburg) – Website / Facebook
• Tiny The Mighty (Working in Fourways) – Facebook
• Woodside Sanctuary (Working in Auckland Park) – Website / Facebook

KwaZulu-Natal

• The Hillcrest AIDS Centre Trust (Working in Hillcrest) – Website / Facebook
• KwaZulu-Natal Blind and Deaf Society ( Working in KZN) – Website / Facebook

Mpumalanga

• Nelspruit Hospice (Working in Nelspruit) – Website / Facebook

Western Cape

• Grandmothers Against Poverty and AIDS (Workings in Khayelitsha) – Website / Facebook
• Helderberg Stroke Support Group (Working in Somerset West) – Website / Facebook
• Heroes of Groote Schuur (Working in Cape Town) – Facebook
• The Chaeli Campaign (Working in Plumstead) – Website / Facebook
• The Rachel Swart Fund (Working in Mowbray) – Website / Facebook
• Vasco Special Needs Centre (Working in Cape Town) – Website / Facebook
• Western Cape Association for Persons with Disabilities (Working in the Western Cape) – Website / Facebook
• Western Cape Blood Service (Working in Western Cape) – Website / Facebook

Sources: Supplied

Don’t ever miss the Good Things. Download the Good Things Guy App now on Apple or Google. 

Do you have something to add to this story? Please share it in the comments or follow GoodThingsGuy on Facebook & Twitter to keep up to date with good news as it happens, or share your good news with us by clicking here or click the link below to listen to the Good Things Guy Podcast with Brent Lindeque – South Africa’s very own Good Things Guy. He’s on a mission to change what the world pays attention to, and he truly believes there’s good news around us. In the Good Things Guy podcast, you’ll meet these everyday heroes & hear their incredible stories:

Or watch an episode of Good Things TV below, a show created to offer South Africans balance in a world with what feels like constant bad news. We’re here to remind you that there are still so many good things happening in South Africa & we’ll leave you feeling a little more proudly South African.

The post Charity List: Fighting Diseases, Supporting Disabilities and Promoting Healthcare appeared first on Good Things Guy.

Profmed shares insight into the complex medical landscape by staying ahead of medical trends; this week, they look at the benefits of day clinics versus hospital stays.

South Africa (24 January 2024) – One of the more recent trends that Profmed believe adds high value to its members is the increase in day clinics across South Africa’s metropolitan centres.

What is the difference between day clinics and hospitals?

The main distinction between day clinics and hospitals lies in the duration and intensity of care. Day clinics specialise in providing medical procedures and services that don’t require an overnight stay. In contrast, hospitals are equipped for both short-term and long-term patient care, including emergencies, surgeries requiring post-operative inpatient care, and treatments for severe illnesses.

Day clinics are ideal for certain types of medical procedures, including:

• Minor surgical procedures like cataract surgery or arthroscopy
• Routine screenings and diagnostic tests (e.g., mammograms, colonoscopies)
• Some types of chemotherapy or dialysis treatments
• Minor cosmetic procedures.

These facilities are tailored for procedures that can be done safely without the need for prolonged observation or recovery.

What are the advantages of day clinics?

Day clinics offer several benefits over in-hospital stays for certain medical procedures, particularly considering the risk of infections in hospital settings. Here are some key advantages:

Reduced risk of hospital-acquired infections: Day clinics often have a lower risk of hospital-acquired infections (HAIs) compared to inpatient hospital stays. This is because patients spend less time in the medical facility, reducing their exposure to potential sources of infection. In hospitals, patients are more likely to be exposed to resistant bacteria and other pathogens.

Cost-effectiveness: Outpatient procedures typically cost less than those requiring hospital stays. This is due to various factors, such as reduced need for overnight accommodation and less resource utilisation within the facility. Profmed’s actuaries have extensively reviewed the numbers and bringing select day clinics into its designated service provider networks (DSPN) is a key component in the ability to control costs and keep increases to member contributions low. Selecting a day clinic for qualifying procedures is medically beneficial and cost-effective.

Convenience and comfort: Day clinics often provide a more convenient and comfortable experience for patients. They can return to the comfort of their homes the same day, which can be less stressful and more conducive to recovery for many people. When patients are in a familiar environment, it can positively affect their mental and physical well-being.

Increased efficiency: Day clinics can operate more efficiently as they are often specialised in certain types of procedures. This specialisation can lead to improved outcomes and a smoother patient experience. For some procedures, waiting times at day clinics can be shorter than in hospitals, leading to quicker treatments as well.

Lowered system burden: By handling certain procedures in outpatient settings, the burden on hospitals is reduced. This allows hospitals to focus resources on patients who need more intensive care.

Important questions to ask before selecting a day clinic

It’s important to note that while day clinics offer many benefits, they are not suitable for all types of procedures or patients. The decision between a day clinic and an in-hospital stay should be made based on your specific medical needs and circumstances, often in consultation with healthcare professionals.

Here are a few key questions you should cover when deciding

• Is the facility equipped for my specific needs? Ensure the facility has the necessary equipment and expertise for your procedure.
• What is the risk of infection? Ask about infection rates, especially if you have underlying conditions that could make you more susceptible.
• What are the costs? Compare the costs between a day clinic and hospital for your procedure, including insurance cover. You should also review whether the day clinic is part of your medical aid’s network.
• What does recovery entail? Understand the recovery process and whether it can be managed at home.
• Is there a follow-up care plan? Ensure there is a clear plan for follow-up appointments or emergency care if needed. Profmed offers Healing@Home, which is specifically designed to support home recovery.
• What do patient reviews and outcomes say? Research patient experiences and outcomes for both the facility and the specific procedure.

To find out more about Profmed’s Day Procedure Network and to find the nearest day facility in your area, visit https://profmed.co.za/member-services/network-option-lists/ and to find out more about Healing@Home, visit https://profmed.co.za/member-services/healinghome/.

Sources: ProfMed

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Heroes of Groote Schuur highlight the career of Sister Melony Williams, who has been with the maternity ward for 23 years.

Cape Town, South Africa (18 January 2024) – Heroes of Groote Schuur is a Facebook page dedicated to highlighting the amazing people who work or visit the Groote Schuur Hospital in Cape Town.

The page highlights all the incredible work being done by the staff who keep everything running smoothly. Heroes featured on the page often have the most interesting jobs.

Celebrating the new year, the team highlighted Sister Melony Williams, who is the operational manager in the GSH Maternity Ward. She has been at the hospital welcoming new life, for the past 23 years! This is her inspiring story:

“It’s been 23 years since I started working with the babies at Groote Schuur. My job centres around admin now, but I love working with the babies, and I love watching the moms’ faces light up when they see their babies.

Just two days ago, a mom’s little baby was under the lights as it was being treated for jaundice. The mom was standing there looking at her baby and you could see the joy on her face. I said to her, ‘It’s a nice feeling, isn’t it?’ And she replied, ‘It’s the best.’

We push Kangaroo Care – that’s when we encourage the moms or dads to keep their babies on their chest. We explain to the parents why Kangaroo Care is so important – being kept on a parent’s chest encourages the baby to breath, it helps create a bond and helps with the production of breast milk. We explain to the moms that when the baby is on her chest, and she looks down, then there’s a message that is sent to her brain: “I must produce milk, I must produce milk”. They’re not getting that if they’re in the incubator the whole time.

The dads are often scared to handle their babies because they can be so small and fragile. Recently I had two dads here. I explained to them, ‘Your baby is small, but when you pick him or her up, baby can sense you, and gets used to your smile. And when you’re at home, then you’ll be comfortable to help your wife with the baby.’ I showed them how to open the incubator, take baby out, and move the wires of the monitors. And they really appreciated that, and after that they would open the incubator, and sit with their babies. It was beautiful.

We have a clinic when the babies come back for check ups. Some of those babies will have spent up to three months here when they were first born, so it’s really wonderful to see the moms and babies returning. Moms will say, ‘Sister, look, look how big my baby is.’ And most of the babies will still be on breast milk, which is so nice.” – Sr Melony Williams, operational manager, GSH Maternity Ward

Sources: Heroes of Groote Schuur

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Little Liané has lived with cancer, cerebral palsy, blindness and brain damage all before the age of four years old. Despite the odds, she beat the Big C. Now, hope is on the cards for Liané to push through the aftermath and live a better life:

KwaZulu-Natal, South Africa (10 January 2024) — When Bianca Rossouw’s daughter Liané was in the very early phases of her life, she experienced a series of happenings most won’t go through in an entire lifetime.

Firstly, her legs stopped working unexpectedly. This happened during the peak of the pandemic, which meant that getting help was more stressful than ever.

Her family would come to discover that she had a tumour in her chest (initially diagnosed as pneumonia) which eventually was confirmed as cancer. All of this was the reality for a little girl who was not even a year old yet.

The rabbit hole of challenges furthered, and Liane was also diagnosed with cerebral palsy, brain damage, epilepsy, and the loss of her sight. She is also on a feeding tube.

Despite every single challenge, the toddler who will turn four in April, has proved the odds wrong.

This little legend beat cancer, and she did it despite her doctors telling her family that the chemo was not working. She has been in remission for just over a year and a half.

Liané still has a lot to overcome. As her mom Bianca puts it:

“Liané has kicked cancer’s butt, but was left with the aftermath.” Her parents are now seeking dire medical treatment to help their baby’s life improve. 

Her treatment comes at the massive cost of R50,000 every three months.

Upcoming is the hope for Liané, through a golf day fundraiser, set to be hosted at the Melbourne Hotel, Spa and Golf Estate in Pennington. Golfers, friends, helpers or even those who simply want to spread the word are all being called on by the Roussouw’s.

You can get in touch to help at hopeforliane@gmail.com.

Sources: Bianca Roussouw 

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Or watch an episode of Good Things TV below, a show created to offer South Africans balance in a world with what feels like constant bad news. We’re here to remind you that there are still so many good things happening in South Africa & we’ll leave you feeling a little more proudly South African.

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